tag:blogger.com,1999:blog-12499672008474596862024-03-14T03:17:00.486-05:00Ethan's DesireMy son Ethan has Cerebral Palsy-spastic diplegia.In July 2010 we had an adult stem cell treatment in hopes that our son would get his wish of having as he puts it "New Legs that Work". This blog is our story, adventure and progress.ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.comBlogger87125tag:blogger.com,1999:blog-1249967200847459686.post-78623981763308868772014-07-22T12:21:00.001-05:002014-07-22T12:21:18.043-05:004 yrs ago we had hope...today we have "New legs that work"<iframe allowfullscreen="" frameborder="0" height="344" src="//www.youtube.com/embed/izEjbfwqvEY" width="459"></iframe><br /><br />
<span style="background-color: rgba(255, 255, 255, 0);">Just 4 yrs ago,we took a chance to give our child the chance to walk. We looked at a variety of treatments, but due to host of obstacles including, risks, finances , and extensive time in the hospital, we opted against what we were offered. On top of it all, we were still told, that our son would likely never walk or in a best case scenario, need an assisted device. We were frustrated to say the least with conventional medicine/treatments so we went another route and ventured to Germany for adult stem cells.. While loaded with lots of controversy and frowned upon by the US dr's...I am so glad we did as today my son has his wish; He has new legs that work.<br /> For the most part Ethan uses crutches out in public but at home and when he's in a comfortable atmosphere (school, with friends/family), he throws the "sticks" to the side and runs on his own.<br /><br />All in all despite the bad media and skepticism of it being "snake oil" or "wishful and desperate thinking", I would do it again in a heartbeat. Sadly, today the clinic in Germany is shut down due to investigations and controversies but I am hopeful that with the progressive testing and trials, this amazing treatment will be available in the US sometime in the near future. Until then, we will continue running, walking and challenging this disability known as Cerebral Palsy.</span><br /><br />
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<span style="background-color: rgba(255, 255, 255, 0);">This is today...</span><br /><br />
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<br />ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com1tag:blogger.com,1999:blog-1249967200847459686.post-64290929937071339852013-06-02T17:51:00.001-05:002013-06-02T17:53:38.207-05:00Standing tall, standing proud and having fun...<br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWWnDaouZrv834476h0HGhg6eHCE__0zt82YGtYHeSQdYkimRScKOWxb1sfLBQe-U_WgeIUVBvFayMPTXY4kVo9_hJMwi2KDFR_jEeiMGq_wqcv5Wrz1F5k01fkDQB7X0-B9c5dUBHrn8/s640/blogger-image--1743052158.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWWnDaouZrv834476h0HGhg6eHCE__0zt82YGtYHeSQdYkimRScKOWxb1sfLBQe-U_WgeIUVBvFayMPTXY4kVo9_hJMwi2KDFR_jEeiMGq_wqcv5Wrz1F5k01fkDQB7X0-B9c5dUBHrn8/s640/blogger-image--1743052158.jpg"></a></div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDjBXICcj3hwjinH3cW9ObOfsa6nPdhFbICRbJHbhG9khge5sbtHFialcDwNBpzcrc2yh2EWCUolksUEVPffAYodObwYEOPfmhd5evj8SzUhLdl41ioF-fgq9mTQIMgG7TasKP3V12MfY/s640/blogger-image-542902974.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDjBXICcj3hwjinH3cW9ObOfsa6nPdhFbICRbJHbhG9khge5sbtHFialcDwNBpzcrc2yh2EWCUolksUEVPffAYodObwYEOPfmhd5evj8SzUhLdl41ioF-fgq9mTQIMgG7TasKP3V12MfY/s640/blogger-image-542902974.jpg"></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-71818702456935660322013-06-01T17:24:00.001-05:002013-06-01T17:25:05.887-05:00One more week...<div>Well, the end is in sight...</div><div><br></div>One more week and Ethan will have his legs back. While cumbersome and at times causing me to deep breathe and learn yet another lesson in patience, the serial casting has been beneficial and the range of motion in Ethan's hamstrings is remarkably improved. <div><br><div>We've been teasing him that his "Twins" casts have been certainly bringing the team good luck (his latest pair of casts are red/blue...aka Twins casts) and that we might have to consider keeping them on until the end of the season...somehow Ethan doesn't seem to be very receptive to that idea. Nevertheless next week Monday, they come off...and we can proceed with "next steps"... Yeahhhh!</div><div><br></div><div>School was out for summer vacation on May 23rd and all three of the kids were more than ready for a break and for some warm, sunny weather. We are all truly excited to see what his summer has in store for everyone.</div><div><br></div><div>That's about it for now...</div><div><br></div><div>Until later, </div><div><br></div><div>Lisa</div><div><br></div><div><br></div><div><br></div><div><br></div></div><div><br></div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiF1KtKy7zqWQ7gUDE_PERrvJS9WUKnDWotSg5F_qT8cfa1VfyzrQ0Bo4gF2nPaljSFCiWNXnL4Jy7_hexLDQVSx6afZ835Y8dQvjkG1sSU-uvSkoQC3cZu1kuPVhgGQTmDLvcUhlwgQig/s640/blogger-image-1309143246.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiF1KtKy7zqWQ7gUDE_PERrvJS9WUKnDWotSg5F_qT8cfa1VfyzrQ0Bo4gF2nPaljSFCiWNXnL4Jy7_hexLDQVSx6afZ835Y8dQvjkG1sSU-uvSkoQC3cZu1kuPVhgGQTmDLvcUhlwgQig/s640/blogger-image-1309143246.jpg"></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-91410605601148155702013-04-28T13:08:00.001-05:002013-04-28T13:43:52.381-05:00Long time...no updatesIt's been awhile since I've updated things so I thought I take a few minutes to share where things are... In February we decided to have some serious fun and took our first official family vacation. As we had promised the kids, we opted for Disney but which one was the ultimate question...well, Ethan made the final decision for us as he had his heart set on going to CarsLand...so off we were bound to California's DisneyLand. All I can say is Amazing! We all had so much fun enjoying a break from our hectic life... 5 days of fun...not once did we think about surgeries, drs, therapy or any disabilities. Disney treated us like absolute movie stars from the time we checked into the hotel til the time we left... The entire family had fun. <br />
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A few days after we got back however we were back to Mnpls for a follow up drs appt...and we again found out that more surgery was in order.<br />
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Our little man had grown so much over the last few months that we could not keep up with stretching and as a result, his little hamstrings were getting tight again. One good note that we asked the surgeon to confirm at least 3x was that this tightness was NOT an issue of tone but instead rapid growth...wooohhhoo! So since It was time to remove the hardware from last year's surgery, the surgeon agreed to do some deep tissue Botox and an aggressive series of serial casting for a 6 week period. Ugh...this requires casts up to almost his waist and trips to mnpls every 2 weeks for cast changes. I wasn't quite ready for this all over again, mentally or physically but both me and my husband knew that we had to proceed to avoid future orthopedic issues.<br />
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Well, fast forward to April... Surgery occurred last week Thrs and all went fairly well. We have a large bag of hardware and a champ in 2 long legged casts...it's been more of a struggle for mom in adapting to the change of routine (bathroom, sleeping, transportation) but we'll get through it...after all its only temporary...right? <br />
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That's where we are right now in this crazy world we know as daily life...we are all very happy to have winter almost over with and we are more than ready for some sunshine and warm temps!<br />
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I'll be more diligent in the future about giving updates but overall Ethan is doing awesome and for those of you wondering if we have ANY Regrets about our option to do stem cells? We can wholeheartedly say no! We would do it again if we were able...We just hope and pray that this medical marvel is soon available In the US as despite the controversial shows and reports, Stem Cells do work! <br />
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That is my closing comments for today...as always keep the prayers and thoughts coming, there isn't a day that we don't need them!<br />
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Until later,<br />
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Lisa <br />
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<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0vodo_6pT6cXa5c0VpZbNa_fde4hSeNJgpZOOKWawl8BcFKohw5uDKMvO-Ap5xxTAqhHnqPu7jJY6-3cyW33nT5gymRB5kEXTthaDbkha1qnSQc77PjC-ZZBUma3RK_hRNRFks5ZEFQY/s640/blogger-image--901240139.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0vodo_6pT6cXa5c0VpZbNa_fde4hSeNJgpZOOKWawl8BcFKohw5uDKMvO-Ap5xxTAqhHnqPu7jJY6-3cyW33nT5gymRB5kEXTthaDbkha1qnSQc77PjC-ZZBUma3RK_hRNRFks5ZEFQY/s640/blogger-image--901240139.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-74032583103630289612013-01-05T17:44:00.001-06:002013-01-05T18:01:05.384-06:00A pair of crutches can be cool!A while back Ethan got his first pair of "really cool" crutches...they were the Avengers! He still loves them but has been wanting another pair for awhile. Today was that day when his new Tim Tebow crutches came in the mail from BFunky Mobility... He was thrilled and totally in awe as now he can really hang out with a true SuperStar... Our next mission, is to get them signed...<br />
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For those of you that know someone who uses a cane or crutches, check BFunky Mobility out...whatever you dream...they can do! One very awesome company and 2 EXTREMELY awesome ladies...thank you Darcy and Sally!<br />
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As a mom, dealing with a special needs child has been hard. It's not just a bonus of having a special handicap parking pass...it's the therapy appts, it's the multiple dr's appts, it's having your home taken up by special equipment, it's wondering where and how each medical bill will be paid for and at times it's dealing with the stares and whispers of others. I always said "there is no way I could have a special needs kid!" And here I am, not mothering one of them but 2. Our oldest son has ADHD/ODD as well, which can be an even more daunting challenge some days.<br />
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I have sat back many a time wondering ..."Why me? Why 2? What did I do?"... For those of you that know me, I have been known to have no patience before having children. I have pondered those questions for 8 years now, and while I still don't have clear cut answers, I do know more than I used to...I've learned to be a better mom and I've learned to find the silver lining in life (no matter how dark the cloud seems to be)...I have met so many other incredible mothers and fathers who bring out the best in me, I've also discovered the best friend a girl could ask for who listens, laughs and scary enough--UNDERSTANDS me. Finally, I have been given so many opportunities to give back to others which is the most rewarding thing one can do.<br />
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In short, I've grown and developed into so much more than what I could have ever dreamed and all because of my 2 special needs kids...I am truly blessed.<br />
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Lisa<br />
ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-84980165207021230262012-11-29T16:39:00.002-06:002012-11-29T16:39:29.731-06:00Ethan's story<iframe src="http://player.vimeo.com/video/51175962" width="407" height="229" frameborder="0" webkitAllowFullScreen mozallowfullscreen allowFullScreen></iframe>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com1tag:blogger.com,1999:blog-1249967200847459686.post-44651514758901610082012-10-04T09:54:00.003-05:002012-10-04T09:54:41.068-05:00all by myself...<div class="separator" style="clear: both; text-align: center;">
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<br />ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com2tag:blogger.com,1999:blog-1249967200847459686.post-65684233501304057792012-09-18T12:02:00.003-05:002012-09-18T12:02:42.336-05:00almost 3 months after the casts came off...Well, we had our 1st "real" follow up/progress dr's appt in Minneapolis yesterday. Everything went well and Ethan showed his stuff off to the doctor and nurses. We saw lots of smiles from everyone and the doctor was impressed with where Ethan was at. There was still some concern about Ethan's crouch and bend but...as long as we can maintain and things don't get worse, we'll be okay.
We go back in January and we'll see how he's doing whereby at that time we'll discuss new braces (hopefully shorter) and other ways to keep his hamstrings stretching with his growth.
Outside of the dr's appt, we have seen confidence and happiness exuding from Ethan. He has walked up and down 25 steps by simply holding the railing vs. sliding down and crawling up. He has attempted to take independent steps and keeps trying to do more and more. For the most part, Ethan's walking full time with crutches now and unless he's feeling tired (or a tad bit lazy), he opts to walk.
School is going well for all the kids. They have started playing Soccer with the HOPE Inc group and they are all gearing up for Halloween with costumes already purchased and ready to go. The boys are loving football this year and ironically Ethan is drawn to Tim Tebow and religiously cheers for the Jets...and now that his legs are healed up he's getting pretty good at Tebowing too. Connor is still hung up on his MN Vikings... and me...well, despite the ridicule, I'll forever be dedicated to my Cowboys, James just cheers for whoever and Ash--well she opts to not cheer for anyone as to a 7 yr old girl Football is dumb...(her words-not mine)
Ahhh...life is fun... well to wrap it up...Our challenges are far from over but they are fewer now than they were 2 years ago. We are truly thankful for all of our blessings and thank you all for your continued thoughts and prayers.
Until later,
Lisa
ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com1tag:blogger.com,1999:blog-1249967200847459686.post-89969846155716051542012-08-24T10:34:00.001-05:002012-08-24T10:36:45.450-05:00Back to schoolWell it's been a little bit since I've updated our site...I'm not sure where our summer went but I do know this...it went unbelievably fast! School seemed to have ended last week only to start up this week...wowzers! All 3 kiddos went back to school yesterday, ironically all of them were pretty excited. Ethan continues to knock everyone's socks off...while he uses his wheelchair for longer distances, he is also using his crutches to get around a good portion of the time. In therapy, he's been walking on a treadmill,going up and down steps, standing independently and a few days ago, he took one step on his own...the pride and smile that emitted from his face was priceless... Progress is a wonderful thing. <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9pXL-Sx7tk8JP1ZtY5yiRn2EQhgU2LskRTV4-KbGeKEqtTkbYNrSr_rHq5IncrNN5te99gC6L4Yd8xrfFlPf2McQ0ApztTL-e8dQPjzWMCh4VJTbiSC55Mf8O92ueOt3keBqrMfN72Sc/s640/blogger-image--1737317595.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9pXL-Sx7tk8JP1ZtY5yiRn2EQhgU2LskRTV4-KbGeKEqtTkbYNrSr_rHq5IncrNN5te99gC6L4Yd8xrfFlPf2McQ0ApztTL-e8dQPjzWMCh4VJTbiSC55Mf8O92ueOt3keBqrMfN72Sc/s640/blogger-image--1737317595.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIFN9V-9JcSGdrDX8DsqAI0owBVoMNxSa_QYUzBAURQpfkulafU7PeDFK7dGsYiIrDL-4vs4YbuI7adzaFrmZX6fD9sc0xaYjWAv4uMoqTgAq03ASdrxmj8HTrDsl79mQCY_5D1t33Sns/s640/blogger-image-1331574354.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIFN9V-9JcSGdrDX8DsqAI0owBVoMNxSa_QYUzBAURQpfkulafU7PeDFK7dGsYiIrDL-4vs4YbuI7adzaFrmZX6fD9sc0xaYjWAv4uMoqTgAq03ASdrxmj8HTrDsl79mQCY_5D1t33Sns/s640/blogger-image-1331574354.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0LSM28gJL0lFRotoCsZ5n4nYJjIKp6rwxT1zDoeJwuAc05wMiXcHCiPI56gyWBFS9CmdXv15O59EIHgGDTycPA7pw83OfqLGL9E_3B2A-ontIZZOjS8JFCXz5MiRXlHLzkjHZX_Z064U/s640/blogger-image-584562251.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0LSM28gJL0lFRotoCsZ5n4nYJjIKp6rwxT1zDoeJwuAc05wMiXcHCiPI56gyWBFS9CmdXv15O59EIHgGDTycPA7pw83OfqLGL9E_3B2A-ontIZZOjS8JFCXz5MiRXlHLzkjHZX_Z064U/s640/blogger-image-584562251.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-13677658158880251432012-07-13T13:04:00.000-05:002012-07-13T13:04:14.799-05:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiL3-QPTMidR2X8Q5YE9JRRNeLoq3iV3fXoAbcZngctW6bHiSprUTCsWYDE_nY3AlFLvqHAaf7MKxnPZHLQKXb0VZkXcYpkuQdjfPDYoicNHT3HCYvzZnyGrekCmnq7vDJKW246AILoX4/s1600/CCF_2011_Event_photos222.jpg" imageanchor="1" style="margin-left:1em; margin-right:1em"><img border="0" height="200" width="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiL3-QPTMidR2X8Q5YE9JRRNeLoq3iV3fXoAbcZngctW6bHiSprUTCsWYDE_nY3AlFLvqHAaf7MKxnPZHLQKXb0VZkXcYpkuQdjfPDYoicNHT3HCYvzZnyGrekCmnq7vDJKW246AILoX4/s200/CCF_2011_Event_photos222.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-5440569802522352582012-07-10T07:42:00.001-05:002012-07-10T07:42:20.564-05:00Ethan walking with crutches for the 1st time since surgery in May<iframe allowfullscreen="" frameborder="0" height="270" src="http://www.youtube.com/embed/9YtjPVOvtQQ?fs=1" width="480"></iframe>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-45167659566807778882012-06-25T10:33:00.001-05:002012-06-25T10:33:15.680-05:00Next steps and a crown...Well today we finally get the casts off! Ethan is excited to be free of them but a tad apprehensive about the removal as the saw always scares the witts out of him. I'm excited too as once they are off, my smelly boy is getting a serious bath! <br />
In other news, we got a call earlier this week asking us if Ethan would be interested in being the 2012 prince for the ND Shriner's Bowl in July. Ethan giggled with delight and said yes but with 2 stipulations... 1) that he doesn't have to hold the princess's hand 2) he doesn't have to talk... Give him a crown and immediately he gets demanding...watch out Prince Harry and William...you've got competition! <br />
ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-6624117370522131082012-06-09T11:15:00.001-05:002012-06-09T11:23:14.791-05:00Let the Fun beginPhysical therapy Tuesday and Friday for the 1st time since surgery...Ethan was a little apprehensive but he did fabulous and by the time PT left on Tuesday, he had rolled over and had tummy crawled a little distance...of course he grumbled about it hurting but he did it with a smile too. Then he did it. For most, it wouldn't be a big deal but for me it was one of those 1st moments for mom...after rolling to his back...in the middle of the floor...without ANY help or support, Ethan sat up-legs extended-hands in his lap... So we fast forward to Thursday...he did some more rolling, tummy crawling but then...we went ups level...4 point crawling stance and hang on everyone...we stood at the couch...only for a moment but he was vertical and with oh so straight legs and so tall. Again he fussed some but all with a big grin so I have a feeling I'm being worked for some sympathy... <br />
Overall we are doing well and very excited about our next steps... Well I better wrap up...<br />
Until later, <br />
Lisa<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSaVsiuFZ8fCy_t_iEU2wpnWHdDHzshidtLDnHIe2FS1rwSn9O9bYEWQy8uljkt7U1_L8QMpNbRMP8dZ-fhW_Zi7xBP8s8mKmWaKQ-x4eiOWyFmJmzCXh0BtCllhy4fQYBwd99TP_JcR4/s640/blogger-image--1013476180.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSaVsiuFZ8fCy_t_iEU2wpnWHdDHzshidtLDnHIe2FS1rwSn9O9bYEWQy8uljkt7U1_L8QMpNbRMP8dZ-fhW_Zi7xBP8s8mKmWaKQ-x4eiOWyFmJmzCXh0BtCllhy4fQYBwd99TP_JcR4/s640/blogger-image--1013476180.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2xsYEKs-ftr2vMt4-gh9D_PuDrDmuZyo4P37eabPqr_8W2JxBfEXYOhZ6SpEam3z7-NNNw7rkNEastJQ7SHPtXB1mSILzECzEkrgYfPeU0RvfyG-LYTLJUJVYKKrbt9qIvBoddd3V8js/s640/blogger-image--591161869.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2xsYEKs-ftr2vMt4-gh9D_PuDrDmuZyo4P37eabPqr_8W2JxBfEXYOhZ6SpEam3z7-NNNw7rkNEastJQ7SHPtXB1mSILzECzEkrgYfPeU0RvfyG-LYTLJUJVYKKrbt9qIvBoddd3V8js/s640/blogger-image--591161869.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjP2tK0E0ACBQxlso-Aa54lvk42DumvtAKTR_OtRbxFee1yIIWToZqDHzzH94oefBCILq3cyBQXc9SkslbK3Yf6pzuIlZnfP-X0H3IzbMALxFshflo1XuPoUX8lGWi-GJToh89yjfnGEOg/s640/blogger-image-1461909575.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjP2tK0E0ACBQxlso-Aa54lvk42DumvtAKTR_OtRbxFee1yIIWToZqDHzzH94oefBCILq3cyBQXc9SkslbK3Yf6pzuIlZnfP-X0H3IzbMALxFshflo1XuPoUX8lGWi-GJToh89yjfnGEOg/s640/blogger-image-1461909575.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-81169101131234600842012-06-09T10:59:00.001-05:002012-06-09T10:59:00.094-05:005 weeks laterOur appointment on Monday went ...I was happy with the report from our doctor...Ethan however was not. We had lots of tears, screams and a bucket full of frustration from Ethan as while they took off his casts...it was only temporary while they took X-rays, did molds for new AFOS (braces) and examination ...Ethan wasn't impressed with the fact that they had to put new casts back on...the good news though is that these are only on for 3 weeks and he can do some weight bearing activities. Overall though, he is healing very well and there were no concerns. By the time we left he stood for a moment in a walker...success.<br />
<br />
Until later,<br />
Lisaethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-17835354335138498572012-05-23T22:32:00.001-05:002012-05-24T21:41:12.660-05:003 weeks laterEthan is doing great! He's finally sleeping through the night and is back to school full time. We go back on June 4th to Mnpls and they will take X-rays and will remove the bar and immobilizes. They'll also put walking casts on. In the meantime however, Ethan has learned a new trick and can grab his toes while sitting straight legged...he's also amazed by his knees as he's never really had much of a kneecap... It's been hard but rewarding at the same time and we are excited about what's to come...<br />
<br />
Until later,<br />
<br />
Lisa<br />
<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiB4-DEB0nuskKHFD0ouiLrlHzqtCWSJUeTu20N4d6yLo-YDiBwyEhCqh4EYsWIz9TzEbsi10dD5Jb-YpJxYOwyWFspfKu-Rf5hXqdW0oA_4C6R138Es6O6aS5B_rYCmCJIgIUT_u_QlMU/s640/blogger-image-991247276.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiB4-DEB0nuskKHFD0ouiLrlHzqtCWSJUeTu20N4d6yLo-YDiBwyEhCqh4EYsWIz9TzEbsi10dD5Jb-YpJxYOwyWFspfKu-Rf5hXqdW0oA_4C6R138Es6O6aS5B_rYCmCJIgIUT_u_QlMU/s640/blogger-image-991247276.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com1tag:blogger.com,1999:blog-1249967200847459686.post-14543945492260483822012-05-06T11:43:00.001-05:002012-05-06T11:45:39.096-05:00When can I?I heard the words this a.m. ...when can I? I love those words as to me it means healing and motivation. Ethan already wants to go back to school monday and was a tad bit miffed at the fact that I told him no...on the flip side I'm a little bit excited to see him go to school as he seems to be calling on mommy quite a bit making a nap or the ability to get much work done somewhat difficult at times...nevertheless his brother & sister are taking great care of him...<br />
Overall, we are managing despite my many tears, stresses and concerns...<br />
<br />
Until later, <br />
Lisa <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOMuPL-6fW5KwkRe1EJYo9oRdYQPXXd4xOCfILehCd4j_I6S74qCvw6S38pwY2XC93mzLZpa0g6dG6hRg-OEKKo9kASqB-hWkI364SH5enPx5lr2A2FsCC1uY06AUmSRNc-OqCYSHtCSI/s640/blogger-image-693034486.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOMuPL-6fW5KwkRe1EJYo9oRdYQPXXd4xOCfILehCd4j_I6S74qCvw6S38pwY2XC93mzLZpa0g6dG6hRg-OEKKo9kASqB-hWkI364SH5enPx5lr2A2FsCC1uY06AUmSRNc-OqCYSHtCSI/s640/blogger-image-693034486.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyOx_Q_pJNCfBLfSCHn6hckhk_Q2J5fixXSOOaTFWxxhRRdPwNBuKrs286J6_tor-O0wM16THyqd5DWERwWxpNEYUhgOINyPmau0_rYd5sUkhGSndFtzhZaOx038cKCLM0sNlr2oQpwjg/s640/blogger-image-1832856636.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyOx_Q_pJNCfBLfSCHn6hckhk_Q2J5fixXSOOaTFWxxhRRdPwNBuKrs286J6_tor-O0wM16THyqd5DWERwWxpNEYUhgOINyPmau0_rYd5sUkhGSndFtzhZaOx038cKCLM0sNlr2oQpwjg/s640/blogger-image-1832856636.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-71686116625492824282012-05-05T18:08:00.000-05:002012-05-05T18:08:08.045-05:00We're home...well, we were discharged a day early and actually got home last night. Ethan is doing okay...still achy and in some pain at times but definitely getting better each day.
He is pretty much refusing all "pain medications" and in turn will only take tylenol or Advil which makes it hard. He outright has told me the others make him feel icky...and I have no doubt about that as my little boy has definitely disappeared in a sea of side affects. Nevertheless, he's hanging in there. Each day will get better...and before you know it, days will turn into weeks and weeks into a month--which is when we go back. At our June 4th appt, we'll get the immobilizer bar off as well as the immobilizers will be removed (during the day at least) and they will put some walking casts on which will be good as well... I cannot wait and know that 4 weeks will fly by. :-)
Outside of that, that's about it. I'll post more later!
Until later,
Lisaethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-55716002909101479322012-05-02T12:00:00.001-05:002012-05-02T12:00:21.589-05:00The day after surgeryEthan is doing ok...not bad but not great. He's in a considerable amount of pain as to be expected but is also struggling with painful muscle spasms. The staff here has been top notch and we cannot complain at all. Right now the plan is to remove the epidermal tomorrow and to give him pain meds via the IV alone. In addition, he'll likely get casts on tomorrow as well as a removable stabilizing bar. He's making progress and the bumps we're seeing are typical...nevertheless it's never fun to see your little one in pain of any kind. Right now our predicted discharge date is Saturday.<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiig6CKSRCbKnuXuLZlUD-sb4KdoTvp7slACZZi4AoZ30sqtU6VbLg-U6A_HjBNO9UEU6TApBiJFTY2rqA8_N9aEcdU5cVxgZgVNTLNmc_3z550KK4q7X4Mfq1NpNG5kWjoqwxMiQrEQ8c/s640/blogger-image-2075580261.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiig6CKSRCbKnuXuLZlUD-sb4KdoTvp7slACZZi4AoZ30sqtU6VbLg-U6A_HjBNO9UEU6TApBiJFTY2rqA8_N9aEcdU5cVxgZgVNTLNmc_3z550KK4q7X4Mfq1NpNG5kWjoqwxMiQrEQ8c/s640/blogger-image-2075580261.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-78139637122026918282012-05-02T11:52:00.001-05:002012-05-02T11:52:41.662-05:00To my 1st grade class--the day afterToday has been hard. My muscles keep wanting to move and twitch and they hurt a lot. The nurses give me medicines that help make me feel better but they also make me sleepy. Mommy keeps saying sleep is what I need so I guess I'll listen for today and take lots of naps.<br />
The picture is what my legs look like right now...<br />
<br />
Your friend , Ethan <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5qGcefyCj_uKNIeqtAlt3gyUqyu6S5CpPGOiWkyBUX-l-hI9MydEJUBRBE14kE9u8ZDr8brXQ9YFcM8EhU8ZzfwoOCewHsv1LpmfzcndD3ynzFiWHTMpqFfaBe8dkREvM2ekeakm-YnI/s640/blogger-image-373117028.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5qGcefyCj_uKNIeqtAlt3gyUqyu6S5CpPGOiWkyBUX-l-hI9MydEJUBRBE14kE9u8ZDr8brXQ9YFcM8EhU8ZzfwoOCewHsv1LpmfzcndD3ynzFiWHTMpqFfaBe8dkREvM2ekeakm-YnI/s640/blogger-image-373117028.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-40653982586091997272012-05-01T20:50:00.001-05:002012-05-01T20:50:35.433-05:00To my 1st grade class...I'm okay!Well surgery is over and I'm feeling okay. I still have lots of machines hooked up to me which give me medicines and make sure my body is working okay. I'm also in a very special care area which take extra special care of kids like me after surgery. My legs have special casts on them right now but in a couple of days I'll get different casts and I'll get to pick the color of the casts! Well I better go to bed but I wanted to say I'm okay. I'll leave another message tomorrow.
Your friend,
Ethanethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com1tag:blogger.com,1999:blog-1249967200847459686.post-54021071742747028262012-05-01T16:17:00.001-05:002012-05-01T16:17:04.821-05:00Surgery updateEthan's surgery is over. The surgeon said he did very well overall. Nevertheless as to be expected...he is in ALOT of pain and is in the ICU. Hoping the pain meds help and that the anesthesia wears off soon. ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com3tag:blogger.com,1999:blog-1249967200847459686.post-16769133341671216392012-05-01T11:00:00.001-05:002012-05-01T11:20:28.783-05:00To my 1st grade class...luv ethanI'm doing okay here...they have lots of fun stuff to do here at the hospital and the nurses are really nice too. I have my own TV and a remote that can do lots of cool things like make my bed move, turn the lights on/off, call a nurse and turns on/off the TV. I'm a little scared about surgery but excited too...gotta go as the doctors are here to take me to surgery but I'll send another note later. Miss you all! <br />
<br />
Your friend--Ethan<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJpWqa0fdYs7B26OMol6MqPupsDtOo-uFtSUKhfyXMIM1wHm-zXTy_nxA4vfz63VNVzloBs5rSZDT8vsmMb6tDrcuTyi8ohvc0qjbqyuoi8U2hUnN8azacvbYxm85vbXxuReUJtuIy3Yg/s640/blogger-image-444802243.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJpWqa0fdYs7B26OMol6MqPupsDtOo-uFtSUKhfyXMIM1wHm-zXTy_nxA4vfz63VNVzloBs5rSZDT8vsmMb6tDrcuTyi8ohvc0qjbqyuoi8U2hUnN8azacvbYxm85vbXxuReUJtuIy3Yg/s640/blogger-image-444802243.jpg" /></a></div>ethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-61620927328333085212012-04-30T23:07:00.000-05:002012-04-30T23:07:18.348-05:00TomorrowTomorrow is the day...surgery at 9:30 a.m. In the meantime it's 11 pm and the tears ate streaming down my face as I attempt to make this update. Why? Partially out of sheer terror as a parents 1st instinct is to protect your child from pain ...I'm deliberately subjecting him to pain & a lot of it...if he was in a lot of pain I might not be feeling as bad but right now he's feeling great which I think is part of my issue...the other underlying reason is likely relief as this is what we've been waiting for... A chance for our son to walk and stand on his own.i will pass updates as I can tomorrow.
Until later,
Lisaethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0tag:blogger.com,1999:blog-1249967200847459686.post-13524736503625447112012-04-29T20:16:00.001-05:002012-04-29T20:16:43.862-05:00The day is almost here...Well the big day is almost here...Ethan is so very excited however I am scared to death. Not sure I know what I'm scared of as the doctors at the Shriners are good drs...after all this is the surgery that we've dreamed of and worked so hard for. Maybe its taking away all that Ethan has worked for as of late, despite knowing that sometimes you have to take things away to give your child more. Maybe it's concern of the general unknown...who knows...but nevertheless we move on and our adventure continues.
So tomorrow we adventure on to our Pre -op appt and then off to some "fun"...aka Como Park. Surgery is currently scheduled for 7:30 a.m. Tuesday so I will update the blog as we know and hear more over the next few days.
Your prayers for strength, wisdom and peace are much appreciated.
Until later,
Lisaethanwalkshttp://www.blogger.com/profile/07337598116658093890noreply@blogger.com0