Long time...no updates

It's been awhile since I've updated things so I thought I take a few minutes to share where things are... In February we decided to have some serious fun and took our first official family vacation. As we had promised the kids, we opted for Disney but which one was the ultimate question...well, Ethan made the final decision for us as he had his heart set on going to CarsLand...so off we were bound to California's DisneyLand. All I can say is Amazing! We all had so much fun enjoying a break from our hectic life... 5 days of fun...not once did we think about surgeries, drs, therapy or any disabilities. Disney treated us like absolute movie stars from the time we checked into the hotel til the time we left... The entire family had fun.

A few days after we got back however we were back to Mnpls for a follow up drs appt...and we again found out that more surgery was in order.

Our little man had grown so much over the last few months that we could not keep up with stretching and as a result, his little hamstrings were getting tight again. One good note that we asked the surgeon to confirm at least 3x was that this tightness was NOT an issue of tone but instead rapid growth...wooohhhoo! So since It was time to remove the hardware from last year's surgery, the surgeon agreed to do some deep tissue Botox and an aggressive series of serial casting for a 6 week period. Ugh...this requires casts up to almost his waist and trips to mnpls every 2 weeks for cast changes. I wasn't quite ready for this all over again, mentally or physically but both me and my husband knew that we had to proceed to avoid future orthopedic issues.

Well, fast forward to April... Surgery occurred last week Thrs and all went fairly well. We have a large bag of hardware and a champ in 2 long legged casts...it's been more of a struggle for mom in adapting to the change of routine (bathroom, sleeping, transportation) but we'll get through it...after all its only temporary...right?

That's where we are right now in this crazy world we know as daily life...we are all very happy to have winter almost over with and we are more than ready for some sunshine and warm temps!

I'll be more diligent in the future about giving updates but overall Ethan is doing awesome and for those of you wondering if we have ANY Regrets about our option to do stem cells? We can wholeheartedly say no! We would do it again if we were able...We just hope and pray that this medical marvel is soon available In the US as despite the controversial shows and reports, Stem Cells do work!

That is my closing comments for today...as always keep the prayers and thoughts coming, there isn't a day that we don't need them!

Until later,

Lisa