My son Ethan has Cerebral Palsy-spastic diplegia.In July 2010 we had an adult stem cell treatment in hopes that our son would get his wish of having as he puts it "New Legs that Work". This blog is our story, adventure and progress.
A WORD TO READERS:
This Blog is intended to educate as many as possible. Our story is unique as is each story of a special needs child.
Thank you!
Lisa
Thank you!
Lisa
Thursday, November 29, 2012
Thursday, October 4, 2012
Tuesday, September 18, 2012
almost 3 months after the casts came off...
Well, we had our 1st "real" follow up/progress dr's appt in Minneapolis yesterday. Everything went well and Ethan showed his stuff off to the doctor and nurses. We saw lots of smiles from everyone and the doctor was impressed with where Ethan was at. There was still some concern about Ethan's crouch and bend but...as long as we can maintain and things don't get worse, we'll be okay.
We go back in January and we'll see how he's doing whereby at that time we'll discuss new braces (hopefully shorter) and other ways to keep his hamstrings stretching with his growth.
Outside of the dr's appt, we have seen confidence and happiness exuding from Ethan. He has walked up and down 25 steps by simply holding the railing vs. sliding down and crawling up. He has attempted to take independent steps and keeps trying to do more and more. For the most part, Ethan's walking full time with crutches now and unless he's feeling tired (or a tad bit lazy), he opts to walk.
School is going well for all the kids. They have started playing Soccer with the HOPE Inc group and they are all gearing up for Halloween with costumes already purchased and ready to go. The boys are loving football this year and ironically Ethan is drawn to Tim Tebow and religiously cheers for the Jets...and now that his legs are healed up he's getting pretty good at Tebowing too. Connor is still hung up on his MN Vikings... and me...well, despite the ridicule, I'll forever be dedicated to my Cowboys, James just cheers for whoever and Ash--well she opts to not cheer for anyone as to a 7 yr old girl Football is dumb...(her words-not mine)
Ahhh...life is fun... well to wrap it up...Our challenges are far from over but they are fewer now than they were 2 years ago. We are truly thankful for all of our blessings and thank you all for your continued thoughts and prayers.
Until later,
Lisa
Friday, August 24, 2012
Back to school
Well it's been a little bit since I've updated our site...I'm not sure where our summer went but I do know this...it went unbelievably fast! School seemed to have ended last week only to start up this week...wowzers! All 3 kiddos went back to school yesterday, ironically all of them were pretty excited. Ethan continues to knock everyone's socks off...while he uses his wheelchair for longer distances, he is also using his crutches to get around a good portion of the time. In therapy, he's been walking on a treadmill,going up and down steps, standing independently and a few days ago, he took one step on his own...the pride and smile that emitted from his face was priceless... Progress is a wonderful thing.
Friday, July 13, 2012
Tuesday, July 10, 2012
Monday, June 25, 2012
Next steps and a crown...
Well today we finally get the casts off! Ethan is excited to be free of them but a tad apprehensive about the removal as the saw always scares the witts out of him. I'm excited too as once they are off, my smelly boy is getting a serious bath!
In other news, we got a call earlier this week asking us if Ethan would be interested in being the 2012 prince for the ND Shriner's Bowl in July. Ethan giggled with delight and said yes but with 2 stipulations... 1) that he doesn't have to hold the princess's hand 2) he doesn't have to talk... Give him a crown and immediately he gets demanding...watch out Prince Harry and William...you've got competition!
In other news, we got a call earlier this week asking us if Ethan would be interested in being the 2012 prince for the ND Shriner's Bowl in July. Ethan giggled with delight and said yes but with 2 stipulations... 1) that he doesn't have to hold the princess's hand 2) he doesn't have to talk... Give him a crown and immediately he gets demanding...watch out Prince Harry and William...you've got competition!
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