Just wanted to pass along a quick update while I had a few minutes. Ethan continues to do well. We will be returning to Mnpls for further surgery (what exactly will be fixed is yet to be TBD) but that will be in early 2012. We're also switching medical teams and will be going to the Shriners Hospital for Children. We are optimistic on what we'll be told needs to be done to get Ethan on his feet and moving forward.
For now, we are gearing up for the holiday season and for 2 very special birthdays. Ethan and his twin sister Ashlee, turn 7 at the beginning of December so the birthday list has been presented and we are getting ready. Other than that, things are going well. Ethan continues to be "independent"...in fact he told the bus para that he didn't need help getting his backpack and getting off the bus..."I can do it Myself!"... If he keeps up that attitude she jokingly commented she may be out of a job. He holds the flag and helps out in the classroom and is doing quite well at everyday tasks, so overall we are making progress. His bony deformities are the most evident right now and continue to become much more noticeable as he grows. He continues to show no "evident" signs of any seizures associated with Cerebral Palsy--yeah. Somedays I wonder as he has an incredible tendancy to exhibit "selective hearing" and will completely tune you out...however he is also male so I continue to keep that in mind as the most logical answer.
I know this is a short and somewhat non-eventful update however I just wanted to keep folks up to date on where things are at.
Until later...
Lisa
We congratulate you as parents! Keep up the good work! Persistance pays off! We are in Florida as of October 30th & will be here until the snow is gone. Enjoying ourselves! 55+ community with a heated pool I have a trike! Back to childhood! John now has 2 scooters. One in MN & one here. so we are able to go more places.
ReplyDeleteQuestion?? Would you go back to Germany for more stem cells if you could? we can't afford it at this time. I think we would if we could. John had about 6 months of improbement & then went back to the same. Possibly different with a young child and positive attitude!
Take Care!
My Mom who is almost 91 is 3 miles from us & lives alone. Enjoying being here for her!
John & Susan
John and Susan said...
ReplyDeleteWe congratulate you as parents! Keep up the good work! Persistance pays off! We are in Florida as of October 30th & will be here until the snow is gone. Enjoying ourselves! 55+ community with a heated pool I have a trike! Back to childhood! John now has 2 scooters. One in MN & one here. so we are able to go more places.
Question?? Would you go back to Germany for more stem cells if you could? we can't afford it at this time. I think we would if we could. John had about 6 months of improvement & then went back to the same. Possibly different with a young child and positive attitude!
Take Care!
My Mom who is almost 91 is 3 miles from us & lives alone. Enjoying being here for her!
John & Susan
December 1, 2011 10:25 AM
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Lisa,
ReplyDeleteI have been following your families progress for the last year and it is amazing. I have used your story in my classroom discussions on stem cells and use Ethan and a success story. Keep up the great work and perseverance. God bless and Merry christmas.
Rob Owens