A WORD TO READERS:

This Blog is intended to educate as many as possible. Our story is unique as is each story of a special needs child.

Thank you!











Lisa












Wednesday, May 18, 2011

Finding a bridge over troubled waters

Well, it looks like warm(er)weather has finally decided to come to our area...the kids are having a blast being outside and Ethan is becoming quite fast on his bike...occassionally I even find myself out of breath trying to keep up with him.
Outside of that we all are doing well and keeping in stride. We visited with the orthopedic surgeon yesterday and have some decisions coming up in regards to next steps and handling Ethan's hamstrings. More updates will likely follow in the next few weeks.

The last few weeks have been tough for me in particular. With some changes (not all details are known), the clinic we visited in Germany has closed. Some say temporary; some say permanent. Thankfully none of the known reasons include health risks but turn towards more political & ethical ventures.
Needless to say, people have been taking it upon themselves to gobble up the "scandal" and to suddenly become 'experts' on the topic. Labels such as "pathetic", "desperate" & "Suckers" have been placed on many parent(s) who have taken their child for treatment at the associated clinic.
In the last few days, I've received some harsh emails-none of which I have commented back on but instead have deleted; one comment regarding my son directly and one questioning how I can call myself a good mother. Both very hurtful. I realized that when we went into this adventure, that it was full of controversy but in turn it frustrates me when people like to comment in such a manner without knowing all the facts. In the end, I'm looking it as an opportunity to learn how to be a stronger/wiser person and as a chance to develop that "thick skin" everyone talks about.

Overall, whatever the case, what I can say is that my wonderful son has IMPROVED SIGNIFICANTLY and is enjoying life more than ever--thanks to the treatment. Neither myself nor my husband have any regrets.

What amazes me even more is that people are continuing to seek treatment and while the door to Germany may have closed, parents are continuing to seek opportunities to go to elsewhere to have their loved ones treated in hopes of seeing improvement. They will not give up and for that they have my full admiration and support.

That's about it for now but again, prayers & support are much appreciated as we lumber though this time of uncertainty and craziness.