A WORD TO READERS:

This Blog is intended to educate as many as possible. Our story is unique as is each story of a special needs child.

Thank you!











Lisa












Sunday, June 5, 2011

Summer Time Enjoyment and our Next Steps

June is FINALLY here as is our warmer weather!

The kids are having a great time being outside. Ethan continues to get stronger and its so much fun watching him walk around the backyard doing things this year that we never imagined him ever being able to do. Over the last few weeks in May, he decided to start "walking" down and off the bus steps. He simply got his footing, grabbed the rails and carefully walked off. His bus driver, Lois, was so helpful and made sure that he didn't fall each and every night. She was a God-send! Never the less, the pride that showed on Ethan's face every night was something that made me beam as well..."Look mom--I did it" and then with a headstart, he'd race to the front steps, giggling all the way as he walked with his crutches, leaving poor mom in the dust...
Bike riding has gotten better and our rides are getting longer...hence my "workout". One of Ethan's favorite "games" is to let me get close enough to him; he'll look back; squeal and then put his pedaling into high gear...this game is repeated by the little stinker many times-

Well...our next journey begins in September as we'll be driving to Mnpls for a couple of days to repeat the Gait Lab (we previously had one back in Feb 2010) to determine what surgery needs to be done next. We're suspecting that some bone twists will need to be corrected along with some other orthopedic needs but we'll just have to wait and see what the dr's want to do. Honestly...the thought of driving in the cities gives me an anxiety attack but...we'll make it through as we always have and as one of my friends reminded me of the other day...we won't have to go through customs (which was one of the things I fretted about when we went to Germany last summer--don't ask)... Our only other concern at this point is how surgery will all play into our plans to go to DisneyWorld next year (planned for end of Feb/1st of March)... but again...it will work out and we will cross that bridge when we get there).

Otherwise, life has been good...no more nasty emails/comments since my last post. So I'm hoping it stays that way. After my last post, I had so many supportive comments from friends/supporters--THANK YOU! Those comments mean the world to us.

Well..that's its for now. Have a great summer...Until later..

Lisa