A WORD TO READERS:

This Blog is intended to educate as many as possible. Our story is unique as is each story of a special needs child.

Thank you!











Lisa












Tuesday, July 22, 2014

4 yrs ago we had hope...today we have "New legs that work"



Just 4 yrs ago,we took a chance to give our child the chance to walk. We looked at a variety of treatments, but due to host of obstacles  including, risks, finances , and extensive time in the hospital, we opted against what we were offered. On top of it all, we were still told, that our son would likely never walk or in a best case scenario, need an assisted device. We were frustrated to say the least with conventional medicine/treatments so we went another route and ventured to Germany for adult stem cells.. While loaded with lots of controversy and frowned upon by the US dr's...I am so glad we did as today my son has his wish; He has new legs that work.
 For the most part Ethan uses crutches out in public but at home and when he's in a comfortable atmosphere (school, with friends/family), he throws the "sticks" to the side and runs on his own.

All in all despite the bad media and skepticism of it being "snake oil" or "wishful and desperate thinking", I would do it again in a heartbeat. Sadly, today the clinic in Germany is shut down due to investigations and controversies but I am hopeful that with the progressive testing and trials, this amazing treatment will be available in the US sometime in the near future. Until then, we will continue running, walking and challenging this disability known as Cerebral Palsy.




This is today...







1 comment:

  1. This is a remarkable story and really give people like us hope. we have a 4 year old boy who suffered a brain injury and are looking into stem cell therapy could you advise any centres you would recommend for this treatment. please contact me at philipm@chatham.co.uk Best Wishes. Philip Marsh

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