Another weekly update and Ethan proves to be more and more limber in his legs. He has proven to us that he too admires his "new legs" and he is continuously showing off his "moves" to anyone who will watch. Its quite amusing. He is also getting somewhat used to his new found fame and proudly got off the school bus on Monday saying..."Mom! I'm famous" (Ethan's continued story was front page of the Fargo Forum)... however on Tuesday he also told me "Mom...I don't want to be famous anymore, I just want to be Ethan"... he is a shy boy and while he likes the attention at times I think he is perfectly fine without it too. Needless to say, as I told him, he is helping people and its not fame we're after...its educating others and showing the changes that have come from this wonderful treatment. As of this week, I have been approached by several new people, asking about the treatment...and not just people with children who have CP, its been people who have MS and other conditions. Its been a great opportunity to pass the word.
I also took a brave but noble step and wrote to our senators in ND; asking what can be done to further research, not only in our state but nation wide...what are we really waiting for. They will probably ignore the email but hey...it was worth the shot. I've learned, you don't get answers unless you ask the questions.
Next week we leave for Sioux Falls to have orthopedic surgery. Excited and scared as this will be the next leg of our journey but hoping it will be the one that gets our little boy up and moving again. Ethan isn't a bit excited as it involves doctors and people of the medical profession.I'm pretty sure he will be mad at us for a while but someday, when he has a pretty girl on his arm and he's dancing on his own 2 feet...he'll thank us. He'll forgive us too when he's having fun at DisneyWorld... Not sure when that will be as Ethan will have to determine the timeframe but with the help of his brother and sister...I'm sure we'll see Orlando in the next year or so.
Anyhow...better go. Take care everyone and please keep us in your prayers...they are valued beyond words.
Lisa
Tears in our eyes for sure! As of now...we are in Cologne,
ReplyDeleteGermany. My husband had stem cell implantation yesterday! He says his left ankle feels loose! 24 hours later! He has MS. He's not sure how to walk, as his ankle & foot have been all balled up & spastic! Need to get back to the states & get into the Community Center! We are anxious to be home. Hoping for furthur progress & miracles! Love your statement about Ethan with a girl on his arm & dancing! yahhhh stem cells! John & Sue